{"id":225,"date":"2010-02-13T22:59:44","date_gmt":"2010-02-13T22:59:44","guid":{"rendered":"http:\/\/viscontitoscoalda.com\/?p=225"},"modified":"2010-02-13T22:59:44","modified_gmt":"2010-02-13T22:59:44","slug":"ccsvi","status":"publish","type":"post","link":"https:\/\/viscontitoscoalda.com\/index.php\/2010\/02\/13\/ccsvi\/","title":{"rendered":"CCSVI : un aiuto per stare meglio con la sclerosi multipla ?"},"content":{"rendered":"

http:\/\/cnmsc.org\/CCSVI-multiple-sclerosis-patient.aspx<\/a><\/p>\n

CCSVI and its possible relationship to Multiple Sclerosis<\/strong><\/span><\/h3>\n

A recent flurry of newspaper and TV stories about an Italian researcher, Dr. Paolo Zamboni, has created a lot of hope and interest among the MS community, due to his claim that a procedure that he claims as simple will “liberate” patients from their disease. He bases his statements only upon observations that he has made concerning the presence of blockages or kinks in large veins that drain from the brain and spinal cord and calls this CCSVI (chronic cerebrospinal venous insufficiency). By putting in special wires through the groin and passing them up to the area of blockade, he claims to have opened the venous blockages and “cured” the disease.<\/strong><\/span><\/p>\n

As neurologists working at the Canadian Network of MS Clinics (CNMSC), we are always interested to learn of new theories or potential treatments that may help better understand the MS disease process or to treat it. At the same time, we have always demanded that any theory be based on solid scientific evidence and that any claim of a treatment success be subject to peer review and scrutiny. Dr. Zamboni’s observations have yet to be reproduced by others and his theories do not seem to explain many of the aspects of MS we’ve come to understand over the years. For this reason it is important for researchers to seek out the truth regarding Dr. Zamboni’s claims, and this is now going to be supported by a special effort put forth by the MS Society of Canada.<\/strong><\/span><\/p>\n

The MS community has seen and heard of many “treatments and claimed cures” over the years, which have usually turned out to be false. Until the observations regarding CCSVI can be verified and the potential treatment based upon these findings is shown to be safe and effective the CNMSC strongly recommends that patients DO NOT seek to have their veins studied by techniques that have not been standardized, nor should patients be asking for treatments based on these findings that have not been proven. The placement of catheters within great veins to unblock or straighten them requires particular expertise and experience, which most of our neuroradiologists lack. Potential harm can come if the wires fed through the groin and passed within the body to get at veins located in the neck or around the spinal cord, break through the vessel wall, or if they cause bleeding, clotting or infection. Once trials are developed and start up in Canada, interested and eligible patients are welcome to participate in them, where they will be studied or treated within a clear ethically approved protocol. More importantly, we urge our patients NOT to stop their current treatments, nor should they change their management plans in favour of trying to obtain Dr. Zamboni’s “Liberation treatment”.<\/strong><\/span><\/p>\n

————————–<\/p>\n

CCSVI e la sua possibile relazione con la sclerosi multipla<\/em><\/p>\n

Un recente raffica di giornali e racconti TV su un ricercatore italiano, il Dott. Paolo Zamboni, ha creato un sacco di speranza e di interesse tra la comunit\u00e0 di Stati membri, a causa della sua affermazione che con una procedura afferma di ruscire a\u00a0 “liberare” i pazienti dalla loro malattia. Egli basa le sue dichiarazioni solo su osservazioni che ha fatto quanto riguarda la presenza di blocchi o nodi in grosse vene che drenano dal cervello e il midollo spinale e chiama questo CCSVI (insufficienza venosa cronica cerebro-spinale). Con la messa in cavi speciali attraverso l’inguine e passando loro fino alla zona di blocco, egli sostiene di aver aperto i blocchi venoso e “curati” la malattia.<\/em><\/p>\n

Come neurologi di lavoro presso la Canadian Network di MS Cliniche (CNMSC), siamo sempre interessati a saperne di nuove teorie o potenziali trattamenti che possono aiutare a comprendere meglio il processo di malattia MS o di trattarla. Allo stesso tempo, abbiamo sempre chiesto che ogni teoria \u00e8 basata su solide prove scientifiche e che ogni rivendicazione di un successo del trattamento \u00e8 sottoposta a verifica e controllo. Osservazioni Dr. Zamboni devono ancora essere riprodotti da altri e le sue teorie non sembrano spiegare molti degli aspetti della SM siamo arrivati a capire nel corso degli anni. Per questo motivo \u00e8 importante per i ricercatori a cercare la verit\u00e0 riguardo a pretese Dr. Zamboni, e questo sta per essere sostenuta da uno sforzo speciale proposta dal MS Society of Canada.<\/em><\/p>\n

La comunit\u00e0 MS ha visto e sentito parlare di molti “trattamenti e cure sostenuto” nel corso degli anni, che hanno in genere si \u00e8 rivelata falsa. Fino a quando le osservazioni in merito CCSVI pu\u00f2 essere verificata e il potenziale trattamento basata su questi risultati \u00e8 dimostrato sicuro ed efficace il CNMSC raccomanda vivamente che i pazienti non cercano di avere la loro vene studiati con tecniche che non sono stati standardizzati, n\u00e9 i pazienti dovrebbero chiedere per trattamenti a base di questi risultati che non sono stati dimostrati. Il posizionamento di cateteri in vene grande per sbloccare o raddrizzare li richiede particolare competenza ed esperienza, che la maggior parte dei nostri neuroradiologi mancanza. Potenziale danno pu\u00f2 venire se i fili alimentato attraverso l’inguine e passati all’interno del corpo per arrivare al vene situate nel collo o intorno al midollo spinale, rompere la parete del vaso, o se causare emorragie, coagulazione o infezione. Una volta che le prove sono sviluppati e start up in Italia, i pazienti interessati e ammissibili sono invitate a partecipare in loro, dove potranno essere studiati o trattati nell’ambito di un protocollo chiaro punto di vista etico approvato. Ancora pi\u00f9 importante, chiediamo ai nostri pazienti non interrompere le loro terapie attuali, n\u00e9 devono cambiare i loro piani di gestione a favore di cercare di ottenere il Dr. Zamboni “trattamento di liberazione”.<\/em><\/p>\n

CCSVI et son lien possible avec la scl\u00e9rose en plaques<\/em><\/p>\n

Une vague r\u00e9cente de journaux et de t\u00e9l\u00e9vision sur un chercheur italien, le Dr Paolo Zamboni, a cr\u00e9\u00e9 beaucoup d’espoir et d’int\u00e9r\u00eat parmi la communaut\u00e9 MS, en raison de son all\u00e9gation selon laquelle une proc\u00e9dure qu’il revendique comme simple volont\u00e9 de \u00ablib\u00e9rer\u00bb les malades de leur maladie. Il fonde ses d\u00e9clarations que sur les observations qu’il a faites concernant la pr\u00e9sence de blocages ou des plissements dans les grosses veines qui drainent du cerveau et la moelle \u00e9pini\u00e8re et appelle ce CCSVI (insuffisance veineuse chronique c\u00e9phalo-rachidien). En mettant en fils sp\u00e9ciaux dans l’aine et de les transmettre jusqu’\u00e0 la zone de blocus, il pr\u00e9tend avoir ouvert les blocages veineux et \u00abgu\u00e9ri\u00bb la maladie.<\/em><\/p>\n

Comme neurologues travaillant au R\u00e9seau canadien de MS Cliniques (CNMSC), nous sommes toujours int\u00e9ress\u00e9s \u00e0 apprendre de nouvelles th\u00e9ories ou de traitements potentiels qui mai aider \u00e0 mieux comprendre le processus pathologique de la SP ou de la traiter. Dans le m\u00eame temps, nous avons toujours exig\u00e9 que toute th\u00e9orie, \u00eatre fond\u00e9e sur des preuves scientifiques solides et que toute revendication d’un succ\u00e8s du traitement soumis \u00e0 examen par les pairs et de contr\u00f4le. Observations de M. Zamboni doivent encore \u00eatre reproduits par d’autres et ses th\u00e9ories ne semblent pas d’expliquer de nombreux aspects de la SEP, nous avons compris depuis des ann\u00e9es. Pour cette raison, il est important pour les chercheurs afin de rechercher la v\u00e9rit\u00e9 au sujet affirme M. Zamboni, et cela va maintenant \u00eatre soutenu par un effort particulier mis en avant par la Soci\u00e9t\u00e9 canadienne de la SP.<\/em><\/p>\n

La communaut\u00e9 de la SEP a vu et entendu de nombreux “traitements et cures revendiqu\u00e9e” au fil des ann\u00e9es, qui ont g\u00e9n\u00e9ralement s’est av\u00e9r\u00e9 \u00eatre faux. Jusqu’\u00e0 ce que les observations relatives CCSVI peut \u00eatre v\u00e9rifi\u00e9e et le traitement potentiel \u00e0 partir de ces constatations est av\u00e9r\u00e9e s\u00fbre et efficace les CNMSC recommande fortement que les patients ne cherchent pas \u00e0 avoir leurs veines \u00e9tudi\u00e9s par des techniques qui n’ont pas \u00e9t\u00e9 normalis\u00e9es, ni les patients devraient se poser pour les traitements \u00e0 base de ces conclusions qui n’ont pas \u00e9t\u00e9 prouv\u00e9e. Le placement de cath\u00e9ters dans les grosses veines de d\u00e9bloquer ou redresser eux n\u00e9cessite une expertise et une exp\u00e9rience particuli\u00e8res, que la plupart d’un manque neuroradiologues notre. Dommages potentiels peuvent venir si les fils aliment\u00e9 par l’aine et passa dans le corps pour obtenir au veines situ\u00e9es dans le cou ou autour de la moelle \u00e9pini\u00e8re, percer la paroi du vaisseau, ou s’ils provoquent des saignements, la coagulation ou une infection. Une fois les essais sont d\u00e9velopp\u00e9s et d\u00e9marrer au Canada, les patients int\u00e9ress\u00e9s et admissibles sont invit\u00e9s \u00e0 participer \u00e0 eux, o\u00f9 ils seront \u00e9tudi\u00e9s et trait\u00e9s dans un protocole clair sur le plan \u00e9thique approuv\u00e9. Plus important encore, nous demandons instamment \u00e0 nos patients de ne pas arr\u00eater leurs traitements actuels, ils ne devraient pas modifier leurs plans de gestion en faveur de tenter d’obtenir le Dr Zamboni “traitement Lib\u00e9ratio n\u00bb.<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

http:\/\/cnmsc.org\/CCSVI-multiple-sclerosis-patient.aspx CCSVI and its possible relationship to Multiple Sclerosis A recent flurry of newspaper and TV stories about an Italian researcher, Dr. Paolo Zamboni, has created a lot of hope and interest among the MS community, due to his claim that a procedure that he claims as simple will “liberate” patients from their disease. He … Continua a leggere CCSVI : un aiuto per stare meglio con la sclerosi multipla ?<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[33],"tags":[88,97,215],"class_list":["post-225","post","type-post","status-publish","format-standard","hentry","category-sclerosi-multipla-e-dintorni","tag-ccsvi","tag-community","tag-ms"],"_links":{"self":[{"href":"https:\/\/viscontitoscoalda.com\/index.php\/wp-json\/wp\/v2\/posts\/225","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/viscontitoscoalda.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/viscontitoscoalda.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/viscontitoscoalda.com\/index.php\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/viscontitoscoalda.com\/index.php\/wp-json\/wp\/v2\/comments?post=225"}],"version-history":[{"count":0,"href":"https:\/\/viscontitoscoalda.com\/index.php\/wp-json\/wp\/v2\/posts\/225\/revisions"}],"wp:attachment":[{"href":"https:\/\/viscontitoscoalda.com\/index.php\/wp-json\/wp\/v2\/media?parent=225"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/viscontitoscoalda.com\/index.php\/wp-json\/wp\/v2\/categories?post=225"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/viscontitoscoalda.com\/index.php\/wp-json\/wp\/v2\/tags?post=225"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}